Category: Cancer

hand reaching out of water

Looking For More Income Online

Many of my readers like the Serenity For Spoonies series of gorgeous peaceful scenery that I post from time to time. I like finding and posting them, too. 

Fortunately, I can schedule these picture posts to appear even when I’m not able to do anything else. Like during the past few weeks when I crashed harder than usual.

Like many of us with ME or other fatiguing illnesses such as MS or heart failure, I’m accustomed to spending a day or even two recovering my energy stores after an exhausting day. But this most recent relapse (I prefer relapse to the official name of post-exertional malaise) kept me in bed or lounging in the recliner longer than I experienced in quite a long time.

woman-lying-in-bed

Fortunately, there are safety nets for people like us. For example, Medicaid can pay for prescriptions and in some states, there are waiver programs that will provide extra support for bathing, dressing, grocery shopping, etc.  Meals on Wheels is another program that will give us at least one meal a day at a reduced rate.

My years in public relations taught me to look for good things even when something appears not so good, so the silver lining to this most recent relapse was that I had a chance to step back and think about this blog.

Although I’m still not settled on a specific way forward, I do want to incorporate some of the things I’m learning about making extra money.

We all know or can imagine how difficult it can be when we have no source of income from a working spouse, parents or something else. Many of us live close to the edge with Social Security Disability as our only income.

However, even though I’m enrolled in a Medicaid community waiver program, I still get tired of counting pennies, shuffling the due dates of bills so I had funds in the bank when they came due, and basically running out of money before my next Social Security check came in. 

dollar-sign

Obviously, if the government declares you disabled you cannot work a 40-hour week any longer. For many of us, even part-time work is too strenuous. This leaves working from home as about the only option open to someone who is disabled with a chronic illness.

So I started looking for ways people are making money by working at home. Some are too strenuous and/or impractical for people like me who suffer from brain fog, for example answering customer service calls. Others take too much time for little return, like responding to surveys.

woman-holding-fan-of-money

I kept finding sites that promised thousands of dollars each month–even millions each year–making money online. Many of these programs are basically multi-level marketing in which you set up a website or websites that entice others to sign up for the expensive program in which you enrolled.

So I fell for the marketing and signed up with a young man whose main promotion was to get his followers excited about fancy expensive cars and a digital nomad lifestyle. He frequently posted videos showing him and his young child in various spectacular places around the world. The promise was that you, too, could be doing this.

expensive-car

His way was a hard-driving, hard-selling method of getting you to sign up and then getting others to do the same thing. You made money from the initial signup and then every month your people remained in the program. He offered free training on how to make videos that would go viral and how to write sales copy that would get people to buy things you recommend. 

This was just not for me nor was it appropriate for someone who often has to step back for several days and not do any online work. He offered a money back guarantee, so I wrote to say the program was just not for me and I wanted a refund.

However, I did not qualify for a refund in his eyes because I didn’t stay in the program and do everything as he laid it out. I finally had to threaten to go public and say John Smith (not his real name) was stiffing a grandmother before he grudgingly refunded my money.

My next foray into online marketing was through a young woman who promised income and location freedom with blogging. That sounded great since I already had a blog.

Sue Smith (not her real name) had a largish following of women and at the time I was involved she had just moved overseas using her blog as her sole source of income.

There were examples galore on her website of how to develop what is called a personal brand. In other words, this woman used photos and stories of herself in different locales as the subject of blogs about the place she was in, where she ate and the clothes she wore.

Sue (not her name) was involved every day with members of her group and offered tons of positive reinforcement and support. Almost a polar opposite to the first guy.

She succeeded by getting sponsors for these blogs, like a clothing company, a restaurant or a tourism department. Of course, she also promoted getting others to sign up using a referral code that was unique to you. 

I learned quite a bit about making pretty websites and posts, but this still was too much work. I also didn’t like the constant self-promotion. Her focus on the personal brand just didn’t fit with my lifestyle.

After all, who in their right mind wants to follow someone who can’t leave the house more than a couple hours a week and spends the remainder of the time resting?

My next foray got me into the world of selling on Amazon. That is a whole different story that I will tackle in the next post.

What do you think of my experiences?

Have you tried any work at home schemes? (I’m using schemes like the British do and not with any connotations of something risky or underhanded as we Americans often think of a scheme.)

water in rapids

Serenity For Spoonies #23

This is the next installment of photos I find particularly intriguing and/or relaxing. If you don’t know what a spoonie is, here’s a short article that explains it.

water in rapids
Rushing water boiling through rocks. Photo credit to Landon Arnold.

 

seashore
Is that a monastery at the seashore? Photo credit to Keith Bremner.
water fall
Keeping to the water flow theme of this post, here’s a gorgeous shot by Keanan Brown.
Northern Lights

Serenity For Spoonies #22

This is the next installment of photos I find particularly intriguing and/or relaxing. If you don’t know what a spoonie is, here’s a short article that explains it.

clouds and mountain
Clouds boiling down the mountain. Do you think they will reach the waterfall? Photo credit to Martin Brechtl.
promentory
This shot reminds me of the BBC program Time Team when they went to Wales. Photo credit to Marc Zimmer.
Northern Lights
The Northern Lights are occasionally visible from my home but they’re never extravagant like this shot by Luke Stackpoole.
rock and sea

Serenity For Spoonies #21

This is the next installment of photos I find particularly intriguing and/or relaxing. If you don’t know what a spoonie is, here’s a short article that explains it.

 

golden sun
Is this beautiful golden sun the result of PhotoShop or smog? Photo credit to Nathan Dumlao.

 

rock and sea
An interesting rock formation. What mystical animal do you see? Photo credit to Matt Holland.

 

lakeshore
Are those birds on the left side of this photo taken by Martin Holverda?

 

The IoT Device Disabled People Are Waiting For Is Here–On Sale!

The Internet of Things (IoT) already is making life easier for tech-savvy folks with disposable income. However, many of the devices you can set from a smartphone aren’t always useful for those of us who are home all day. The IoT just wasn’t practical for many people with chronic illnesses–until now.

Amazon has developed a hands-free, voice-activated device disabled woman in wheelchairthat does just about everything someone who is confined to bed or a wheelchair could want.

The Echo Show is a great idea for someone who is disabled, has a fatiguing illness or is otherwise unable to use their hands. I do not own one of these devices, but I’m seriously considering buying it next Monday when Amazon has its Prime Day sales.

Here’s why I think this would be great for anyone who is disabled. With the Echo Show, in no particular order of importance, you can:

  • Watch Amazon Video content
  • See music lyrics on-screen with Amazon Music. Just ask to play a song, artist or genre, and stream over Wi-Fi
  • Play music simultaneously across Echo devices with multi-room music (Bluetooth not supported)
  • View security cameras. Ask Alexa to show the front door or monitor another room with compatible cameras from Amazon and others
  • See your photos
  • Get weather forecasts
  • Just talk to make to-do and shopping lists
  • Browse and listen to Audible audiobooks
  • Call almost anyone hands-free
  • Make video calls to family and friends with an Echo Spot, Echo Show, or the Alexa App
  • Instantly connect to other Echo devices around your home
  • Stream music on Pandora, Spotify, TuneIn, iHeartRadio, and more
  • Turn on lights or the TV, set thermostats, control Amazon Video on Fire TV, and more with WeMo, Philips Hue, Sony, ecobee, and other compatible smart home devices

Plus, Echo Show will get smarter and be adding new features, plus thousands of skills like Uber, Allrecipes, CNN, and more.

All hands-free—just ask the device.

The Echo Show has powerful, room-filling speakers with Dolby processing for crisp vocals and extended bass response. With eight microphones, beamforming technology, and noise cancellation, Echo Show hears you from any direction—even while music is playing.

FLASH: we don’t have to wait for Prime Day since they are on sale now!

I get a small affiliate fee if you purchase after clicking the ad.

Your loved one is ready for discharge–but are you?

Are you ready for your loved one to come home from the hospital or rehab facility?

Here are seven things to consider before the big day.

Equipment: Will you need special medical equipment, called DME (durable medical equipment) like a hospital bed, oxygen, a commode, toilet seat riser and grab bars, a bath chair, bathroom handrails, a hand-held shower attachment, transfer aids, and mobility aids like a quad cane, or a walker? Ask the nurses who give the daily care what you will need at home and have them arrange it before the homecoming. Make sure it is all ready to go and in place on the discharge day. Oxygen canisters can be kept outdoors even in the hottest/coldest climates, but the bulky oxygen generator has to be plugged in somewhere inside the house.

Routines: what changes to the daily schedule will be needed to accommodate rehabilitation or comfort care? If you don’t already have one, get a large wall calendar where you can keep track of medical appointments whether coming to you or going to them. You should receive a list of all medications and times at discharge. Sometimes there are so many things at different times during the day and night that it will be easier if you make a chart. Then you can check off when pills, inhalers, and treatments are taken. Will you need to transform the living room into a bedroom for a short time?

Home Health nurses and aides: Be sure to talk with your doctor or nurse practitioner about ordering home health care. Physical therapy is often ordered for a short time, as well. In most cases, there will be at least one visit with a registered nurse to help you get things set up. He or she can also be a resource for any and all questions. The nurse can help develop that medication chart if you are confused about it, too. Also, a home health aide may be available to help with showering or bed baths. These decisions are dictated by Medicare/Medicaid and private insurance regulations, so each situation is unique.

Household chores: Finding the time and energy to house clean and take care of the yard or do snow removal will be much more difficult while you are a full-time caregiver. Consider hiring help either from one of the many home care agencies like Visiting Angels, Seniors At Home or Safe At Home that provide light housekeeping and personal care. Craigslist can also be a source for help, but don’t forget to ask friends and neighbors.

Safety: You may need to remove throw rugs, fasten down area rugs, install handrails on stairs, and generally remove clutter. Look carefully at anything that would interfere with a mobility aid like a walker or cane. If there will be oxygen, then a sign needs to be fastened to the front door warning there is no smoking in this house. This means no candles, either. Doorways may need to be widened if a wheelchair will be needed long-term.

Extra assistance: Someone who can pick up a prescription or get a few things at the grocery store for you will be invaluable. If you don’t have a support network close at hand, look into home delivery options.

Family Medical Leave/state programs: Medical leave is an option for people with full-time jobs that ensure the position will remain open while you take time out to care for a loved one. Talk with your human resources manager about eligibility. Some states have programs that will pay caregivers and provide funds to modify the home to accommodate medical needs. Call your county Aging, Disability Resource Center (ADRC) for information and help if your loved one is elderly or disabled.

Professional care managers are available in larger cities. For a fee, they will help with whatever is needed. Some of the areas where a care manager can assist are helping you plan and get to doctor’s appointments, helping navigate insurance and healthcare decisions, and communicating with your family and medical team. They can arrange for and schedule additional paid in-home help and set up a simplified medication regimen. Find them through a hospital or rehab facility, ADRC or use a search engine to “find care managers near me”.

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