This is the next installment of photos I find particularly intriguing and/or relaxing. If you don’t know what a spoonie is, here’s a short article that explains it.
The Internet of Things (IoT) already is making life easier for tech-savvy folks with disposable income. However, many of the devices you can set from a smartphone aren’t always useful for those of us who are home all day. The IoT just wasn’t practical for many people with chronic illnesses–until now.
Amazon has developed a hands-free, voice-activated device that does just about everything someone who is confined to bed or a wheelchair could want.
The Echo Show is a great idea for someone who is disabled, has a fatiguing illness or is otherwise unable to use their hands. I do not own one of these devices, but I’m seriously considering buying it next Monday when Amazon has its Prime Day sales.
Here’s why I think this would be great for anyone who is disabled. With the Echo Show, in no particular order of importance, you can:
Plus, Echo Show will get smarter and be adding new features, plus thousands of skills like Uber, Allrecipes, CNN, and more.
All hands-free—just ask the device.
The Echo Show has powerful, room-filling speakers with Dolby processing for crisp vocals and extended bass response. With eight microphones, beamforming technology, and noise cancellation, Echo Show hears you from any direction—even while music is playing.
FLASH: we don’t have to wait for Prime Day since they are on sale now!
I get a small affiliate fee if you purchase after clicking the ad.
Equipment: Will you need special medical equipment, called DME (durable medical equipment) like a hospital bed, oxygen, a commode, toilet seat riser and grab bars, a bath chair, bathroom handrails, a hand-held shower attachment, transfer aids, and mobility aids like a quad cane, or a walker? Ask the nurses who give the daily care what you will need at home and have them arrange it before the homecoming. Make sure it is all ready to go and in place on the discharge day. Oxygen canisters can be kept outdoors even in the hottest/coldest climates, but the bulky oxygen generator has to be plugged in somewhere inside the house.
Routines: what changes to the daily schedule will be needed to accommodate rehabilitation or comfort care? If you don’t already have one, get a large wall calendar where you can keep track of medical appointments whether coming to you or going to them. You should receive a list of all medications and times at discharge. Sometimes there are so many things at different times during the day and night that it will be easier if you make a chart. Then you can check off when pills, inhalers, and treatments are taken. Will you need to transform the living room into a bedroom for a short time?
Home Health nurses and aides: Be sure to talk with your doctor or nurse practitioner about ordering home health care. Physical therapy is often ordered for a short time, as well. In most cases, there will be at least one visit with a registered nurse to help you get things set up. He or she can also be a resource for any and all questions. The nurse can help develop that medication chart if you are confused about it, too. Also, a home health aide may be available to help with showering or bed baths. These decisions are dictated by Medicare/Medicaid and private insurance regulations, so each situation is unique.
Household chores: Finding the time and energy to house clean and take care of the yard or do snow removal will be much more difficult while you are a full-time caregiver. Consider hiring help either from one of the many home care agencies like Visiting Angels, Seniors At Home or Safe At Home that provide light housekeeping and personal care. Craigslist can also be a source for help, but don’t forget to ask friends and neighbors.
Safety: You may need to remove throw rugs, fasten down area rugs, install handrails on stairs, and generally remove clutter. Look carefully at anything that would interfere with a mobility aid like a walker or cane. If there will be oxygen, then a sign needs to be fastened to the front door warning there is no smoking in this house. This means no candles, either. Doorways may need to be widened if a wheelchair will be needed long-term.
Extra assistance: Someone who can pick up a prescription or get a few things at the grocery store for you will be invaluable. If you don’t have a support network close at hand, look into home delivery options.
Family Medical Leave/state programs: Medical leave is an option for people with full-time jobs that ensure the position will remain open while you take time out to care for a loved one. Talk with your human resources manager about eligibility. Some states have programs that will pay caregivers and provide funds to modify the home to accommodate medical needs. Call your county Aging, Disability Resource Center (ADRC) for information and help if your loved one is elderly or disabled.
Professional care managers are available in larger cities. For a fee, they will help with whatever is needed. Some of the areas where a care manager can assist are helping you plan and get to doctor’s appointments, helping navigate insurance and healthcare decisions, and communicating with your family and medical team. They can arrange for and schedule additional paid in-home help and set up a simplified medication regimen. Find them through a hospital or rehab facility, ADRC or use a search engine to “find care managers near me”.
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Back when I was a home health nurse I loved the challenge of caring for wounds. Once I helped a Korean War veteran heal an open sore on his ankle bone he said had been there since he was frost-bitten in 1954! Another challenging wound was a man with a pressure ulcer (bedsore) whose white knobby tailbone could be clearly seen after I removed the dressing.
Remember Christopher Reeve who portrayed Superman until his neck was broken in a horse riding accident? He died because of a bed sore. The cause of death was an adverse reaction to an antibiotic he was taking for sepsis caused by his pressure ulcer. This can simplistically be thought of as a blood infection. However, sepsis occurs when chemicals released into the bloodstream to fight an infection trigger inflammatory responses throughout the body. This inflammation can trigger a cascade of changes that can damage multiple organ systems, causing them to fail.
Although I love wounds, caring for open sores, whether caused by surgery, accident or sensation loss, is a major stressor for families and most (normal) people. Good wound care is a vital part of post-surgical recovery as well as keeping healthy and even alive. Proper wound care is necessary to prevent infection and to promote healing.
Wounds occur when the skin is damaged because of injury. This may be the result of mechanical, chemical, electrical, thermal, or even nuclear sources.
Skin is damaged in different ways depending upon the mechanism of injury. In all cases, inflammation (redness) is one of the first signs of injury.
Wounds are classified into types:
Superficial wounds (on the top surface layer of skin) are caused by friction rubbing against a rough surface, even something seemingly smooth like a bed sheet. They are known as abrasions or skin tears.
Additionally, many seniors take blood thinners like Coumadin® and/or low dose aspirin with resulting “bruises” where blood vessels leak into the tissue just under the skin. These obviously need protection from opening up and require prompt attention when they do.
Deep wounds, such as those following surgery, go through the skin into the underlying tissue, like muscle and fat layers.
Puncture wounds, usually caused by a sharp object entering the skin, could be as minor as a needlestick to give an injection or draw blood, or deep as a stab wound from a knife or similar sharp object.
Bites, whether human or animal, are classified as superficial or puncture wounds, depending on depth and size.
Pressure ulcers (bed sores) develop due to lack of blood supply to the skin. This is the result of chronic pressure on an area, especially over bones. This tissue compression causes a loss of blood supply to the area which increases skin breakdown. First inflammation and then sores develop when a person who is bedridden, sits for long hours in a wheelchair or has a cast pressing on the skin does not remove pressure from the area. Pressure ulcer prevention guidelines specify moving every 20 minutes to relieve compression.
Hospitals are under tremendous insurance pressure to discharge patients as soon as possible after surgery. It’s a very confusing time for family caregivers with a discharge planner, a social worker and maybe even a wound care nurse all giving directions on the day of discharge. No wonder the many details involved in wound care are often forgotten or misremembered!
In most cases, if the wound is not considered complex, teaching is done at the time of discharge. A home health nurse will usually be assigned if the wound is complicated, such as performing wet-to-dry dressings several times each day. However, while a home care nurse keeps the patient as their primary concern, they are required to teach a family member–or a paid caregiver–how to change the dressing. Private insurance and Medicare/Medicaid will not pay for a nurse to stay in the home beyond a specified number of days after discharge.
In addition to surgical wounds, several other populations almost routinely (unfortunately) develop open sores that are specific to who they are. People who are unable to move in bed or in a chair easily often develop bed sores, also known as pressure ulcers. (Waaay back when I was just a nursing assistant, they were also known as decubitus ulcers.)
Diabetics and other people with neuropathy can develop open sores in the areas with poor sensation, like feet and lower legs, due to not feeling an offending pebble in a shoe or a bump on the shin. Preventing more open sores is a vital part of home wound care.
Any wound that doesn’t heal easily and remains open for weeks after most similar wounds heal is considered chronic. These are among the most difficult to successfully treat. Chronic wounds can occur when:
Many hospitals have specialized wound care clinics staffed by nurses, nurse practitioners, and physicians. These health care providers are certified in wound care and work solely with these types of chronic wounds and ulcers. They have access to up-to-date research and technology, such as hyperbaric oxygen chambers and the latest wound care dressings.
Remember, don’t forget to ask questions when the nurse is instructing you! Discharge planning has become an increasingly more important part of the hospitalization. Fines are levied for hospitals who have too many readmissions. And if the wound in question doesn’t require hospitalization, STILL don’t let the nurse get away until you have ALL your questions answered and concerns met.
I’d love to know what my readers thought of this. Was it too medical? Was it helpful? What else would you like to see me write about?